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The European health data space (EHDS) will bring about a major change in the way health data is used in the European Union and therefore affects us all. Thanks to the Sitra-led TEHDAS project, the use of health data for research and innovation in the EU has already taken a major step forward. The successful realisation of EHDS will require broad collaboration.

In order to explore best practices in health data sharing in EU member states, TEHDAS held a workshop to discuss the changes brought about by the European health data space. Based on the workshop TEHDAS identified the different needs for recommendations on cross-border collaboration between health data access bodies.

The European health data space (EHDS) should facilitate the efficient use of health data throughout the EU, while ensuring a high level of personal data protection. TEHDAS has developed recommendations for the technical infrastructure needed to do this.

For the EU-wide use of health data to succeed and be sustainable, EU and national legislation need to be clarified to avert misinterpretation. To avoid losing valuable time, a political agreement on European health data should be reached before the European elections. These were the issues discussed at the final event of TEHDAS joint action.

The European health data space will change the way health data is used in the EU and therefore has direct implications for European countries and EU-funded projects. TEHDAS has held eight forums for stakeholders to prepare for the regulation and bring valuable insights to TEHDAS work.

EU member states support the cross-border use of health data for research and policymaking. But legal barriers and difficulties in data access have led to the underuse of data sources and repositories. Member states vary widely in how they organise and manage health data, as well as in their preparedness to facilitate the secondary use of health data as part of the future EHDS.

The European health data space should facilitate the efficient use of health data throughout the EU while ensuring a high-level of personal data protection. TEHDAS conducted a series of workshops with stakeholders to find out about their views on the kind of technical infrastructure needed to do this.

Citizens support the use of health data if it accords with their values and if its benefits outweigh the risks. People also think that they should be considered as a partner in the governance of data. These are among the main recommendations from a public consultation organised by TEHDAS.

The TEHDAS joint action invites stakeholders across Europe to participate in building recommendations on health data altruism.

The European health data space should facilitate the efficient use of health data across the EU while ensuring a high-level of personal data protection. TEHDAS has analysed the technical requirements needed to do this.