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The follow-up joint action to the TEHDAS project called the Second joint action towards the European health data space, TEHDAS2, is moving forward. The project proposal was submitted to the European Commission on 1 February 2024. The project is expected to start in May.

The European Union is facilitating the safe use of health data across borders to develop new treatments and medicines. Sitra-led TEHDAS joint action conducted the preparatory work on the European health data space (EHDS). Member states selected Sitra on 12 October 2023 to coordinate further work in the EU.

Data altruism is about the sharing and use of data for the benefit of all, thereby making new data sources available for research and innovation. TEHDAS has developed recommendations to enable voluntary data sharing for the European health data space.

The European Union and its member states are starting to share health data. This will require long-term efforts both at national and EU level, covering all aspects of sustainability, including long-term funding.

Data quality is essential for reliable and fit-for-purpose data. TEHDAS has developed a framework to identify the main elements of data quality and utility in the European health data space (EHDS).

For the secondary use of health data to function seamlessly across the EU, legislation and guidelines need to be clear. The European health data space (EHDS) is currently not sufficiently accurate to ensure the consistent realisation of the regulation across member states.

The European health data space (EHDS) will bring about a major change in the way health data is used in the European Union and therefore affects us all. Thanks to the Sitra-led TEHDAS project, the use of health data for research and innovation in the EU has already taken a major step forward. The successful realisation of EHDS will require broad collaboration.

In order to explore best practices in health data sharing in EU member states, TEHDAS held a workshop to discuss the changes brought about by the European health data space. Based on the workshop TEHDAS identified the different needs for recommendations on cross-border collaboration between health data access bodies.

The European health data space (EHDS) should facilitate the efficient use of health data throughout the EU, while ensuring a high level of personal data protection. TEHDAS has developed recommendations for the technical infrastructure needed to do this.

For the EU-wide use of health data to succeed and be sustainable, EU and national legislation need to be clarified to avert misinterpretation. To avoid losing valuable time, a political agreement on European health data should be reached before the European elections. These were the issues discussed at the final event of TEHDAS joint action.