TEHDAS scrutinises European data sharing initiatives
The new report of the Joint Action Towards the European Health Data Space (TEHDAS) examines technical solutions for sharing and using health data.
The results show the differing approaches of the European initiatives studied in the processes and technologies used to access and share health data. The variations are due to differences in the nature of the initiatives analysed and in their levels of technological maturity.
Despite the differences, the report identifies common patterns in the initiatives, such as electronic health records, prescriptions and laboratory results being the most common data sources. The trend among data sharing initiatives is towards allowing data access only in a secure computing environment hosted by the initiative. The security and privacy of data are ensured by different measures including anonymisation and pseudonymisation that make the data record less identifiable.
The report is based on an analysis of survey responses from 14 European data sharing initiatives from six countries addressing the requirements for data sharing and secondary use of health and biomedical data.
In work package 7, TEHDAS continues to work on the technical infrastructure of the European Health Data Space (EHDS) to support access and sharing of health data across the EU.