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Package 8: Citizens

  • Seeks to obtain a better understanding of citizens’ attitudes towards sharing their health data.
  • Identifies ways to inform people about the use of their health data and raise awareness of the benefits that the secondary use of data offers. 

Lead: French Health Data Hub (France), National Healthcare Service Center (Hungary)
Contact: Louisa Stuwe louisa.stuwe@health-data-hub.fr, Csizmadia István csizmadia.istvan@okfo.gov.hu

Stakeholders

In this work package stakeholders participate in an advisory group to share their insight. These stakeholders include citizen and patient associations and other NGOs, academia and industry.

  • b!loba, Belgium
  • CPME – Standing Committee of European Doctors, Belgium/EU
  • Danish Committee for Health Education, Denmark
  • De Gaulle Fleurance & Associés, France
  • Dental School, United Kingdom (UK)
  • DIGITALEUROPE, Belgium/EU
  • ECHAlliance, Portugal
  • European Cancer Organisation, Belgium/EU
  • European Federation of Pharmaceutical Industries and Associations (EFPIA), Belgium/EU
  • EURORDIS, Belgium/EU
  • France Assos Santé, France
  • Ghent University, Belgium
  • MWSciCom, France
  • Nordic Health 2030 Movement, Denmark
  • Sanofi Groupe, France
  • Stelar Security Technology Law Research, Germany
  • The European Institute for Innovation through Health Data (i~HD), Belgium/EU
  • University of Oslo, Norway
  • University of Oxford, United Kingdom (UK)
  • University Paris-Saclay, France
  • Wellcome, United Kingdom (UK)