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Package 8: Citizens

  • Seeks to obtain a better understanding of citizens’ attitudes towards sharing their health data.
  • Identifies ways to inform people about the use of their health data and raise awareness of the benefits that the secondary use of data offers. 

Lead: French Health Data Hub (France), National Healthcare Service Center (Hungary)
Contact: Louisa Stuwe, Csizmadia István


In this work package stakeholders participate in an advisory group to share their insight. These stakeholders include citizen and patient associations and other NGOs, academia and industry.

  • b!loba, Belgium
  • CPME – Standing Committee of European Doctors, Belgium/EU
  • Danish Committee for Health Education, Denmark
  • De Gaulle Fleurance & Associés, France
  • Dental School, United Kingdom (UK)
  • ECHAlliance, Portugal
  • European Cancer Organisation, Belgium/EU
  • European Federation of Pharmaceutical Industries and Associations (EFPIA), Belgium/EU
  • EURORDIS, Belgium/EU
  • France Assos Santé, France
  • Ghent University, Belgium
  • MWSciCom, France
  • Nordic Health 2030 Movement, Denmark
  • Sanofi Groupe, France
  • Stelar Security Technology Law Research, Germany
  • The European Institute for Innovation through Health Data (i~HD), Belgium/EU
  • University of Oslo, Norway
  • University of Oxford, United Kingdom (UK)
  • University Paris-Saclay, France
  • Wellcome, United Kingdom (UK)