Package 8: Citizens
- Seeks to obtain a better understanding of citizens’ attitudes towards sharing their health data.
- Identifies ways to inform people about the use of their health data and raise awareness of the benefits that the secondary use of data offers.
Lead: French Health Data Hub (France), National Healthcare Service Center (Hungary)
Contact: Mario Jendrossek mario.jendrossek@health-data-hub.fr; László Bencze bencze.laszlo@partner.okfo.hu
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Advisory group
In this work package specialists participate in an advisory group to share their insight. These specialists include citizen and patient associations and other NGOs, academia and industry.
- b!loba, Belgium
- CPME – Standing Committee of European Doctors, Belgium/EU
- Danish Committee for Health Education, Denmark
- De Gaulle Fleurance & Associés, France
- Dental School, United Kingdom (UK)
- DIGITALEUROPE, Belgium/EU
- ECHAlliance, Portugal
- European Cancer Organisation, Belgium/EU
- European Federation of Pharmaceutical Industries and Associations (EFPIA), Belgium/EU
- EURORDIS, Belgium/EU
- France Assos Santé, France
- Ghent University, Belgium
- MWSciCom, France
- Nordic Health 2030 Movement, Denmark
- Sanofi Groupe, France
- Stelar Security Technology Law Research, Germany
- The European Institute for Innovation through Health Data (i~HD), Belgium/EU
- University of Oslo, Norway
- University of Oxford, United Kingdom (UK)
- University Paris-Saclay, France
- Wellcome, United Kingdom (UK)