Package 5: Sharing data for health
- Develops options for governance models for the exchange and secondary use of health data between European countries, based on transparency, trust, citizen empowerment and a common good.
- Provides recommendations for European countries on planning national legislation to enable cross-border exchange and secondary use of health data.
Lead: Swedish eHealth Agency (Sweden), Directorate Information Policy of the Ministry of Health, Welfare and Sports (the Netherlands)
Contact: tehdas@rivm.nl
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Advisory group
In this work package specialists participate in an advisory group to share their insight. These specialists include users of health data, such as researchers, innovators and policy-makers as well as providers of health data.
- Association Internationale de la Mutualité (AIM), Belgium/EU
- Association of European Cancer Leagues – ECL, Belgium/EU
- Bavarian Data Protection Commissioner, Germany
- Biomedical Alliance in Europe, Belgium/EU
- CPME – Standing Committee of European Doctors, Belgium/EU
- Danish Committee for Health Education, Denmark
- De Gaulle Fleurance & Associés, France
- DIGITALEUROPE, Belgium/EU
- Digitaliseringskompaniet Sverige AB / Origo programme, Sweden
- DNV AS, Norway
- e-Health Forum, Poland
- Erasmus University Medical Centre, Netherlands
- European Health Data & Evidence Network (EHDEN), Netherlands
- European Association of Urology, Belgium/EU
- European Cancer Organisation, Belgium/EU
- European Coordination Committee of the Radiological, Electromedical and Healthcare IT Industry (COCIR), Belgium/EU
- European Federation for Medical Informatics (EFMI), Switzerland
- European Federation of Nurses Associations, Belgium/EU
- European Federation of Pharmaceutical Industries and Associations (EFPIA), Belgium/EU
- European Health Telematics Association (EHTEL), Belgium/EU
- European University Hospital Alliance, Spain
- EURORDIS, Belgium/EU
- Helmholtz Association of German Research Centres, Germany
- HL7 Europe, Switzerland
- International Council of The Patient Ombudsman, Croatia
- Latvian Biomedical Research and Study centre, Latvia
- MedTech Europe, Belgium/EU
- MSD / EuropaBio, Denmark
- MyData Global, Finland
- Nordic Health 2030 Movement
- Romanian Society of Medical Informatics, Romania
- SNOMED International, United Kingdom (UK)
- The Digital Health Society, United Kingdom (UK)
- The European Clinical Research Infrastructure Network (ECRIN), France
- University of Edinburgh, United Kingdom (UK)
- University of Helsinki, Finland