Skip to content
Project Packages Partners Events Results Contact

Stakeholder forum

The TEHDAS joint action invites stakeholders across Europe to join the discussion on the European Health Data Space and how to make better use of health data in the future.

TEHDAS, the joint action Towards the European Health Data Space, advances more extensive use of health data across Europe. The project supports the European Commission’s aim in creating a harmonised internal market for health data. Our work provides elements to the European Commission’s forthcoming legislative proposal on the Health Data Space.

Connecting and engaging European stakeholders is a priority for TEHDAS. To continue the pan-European discussion, we are gathering stakeholders from academia, business, public sector and NGOs to the digital Stakeholder forum on 27 October 2021.

The programme includes discussions and case examples on the use of health data for policy-making, research, innovation and business. We will focus on the European co-operation in digital health and outline concrete steps to move forward with more extensive use of health data in Europe. The role of individuals in sharing their health data will also be addressed.

The digital event is free of charge but requires prior registration.

Registration for the event is now open: register here. Welcome!  

#TEHDASforum 

Programme

Please note that the time indicated is Central European Time.

Time (CET)Programme
14.00Welcome words by Sitra 
Markus Kalliola, Project Director, Health Data 2030, Sitra
Saara Malkamäki, Specialist, Health Data 2030, Sitra
14.10EU Greeting
Martin Seychell, Deputy Director-General, Directorate-General for International Partnerships, European Commission
14.20Thematic discussion: European co-operation in digital health  

Coen van Gool, Head of WHO collaborating centre for the Family of International Classifications (WHO-FIC), Epidemiologist/Psychologist at Centre for Public Health Forecasting (RIVM)
Henrique Martins, Associate Professor, ISCTE – Lisbon University Institute
Ain Aaviksoo, Chief Medical Officer, Guardtime
14.50Thematic discussion: Baby steps or giant leap in health data use – how to move forward concretely? 

Enrique Bernal-Delgado, Senior Scientist, Head of Data Science for Health Services and Policy Research unit, Institute for Health Sciences in Aragon (IACS)
Anders Bjartell, Professor in Urology, Lund University, Senior Consultant, Skåne University Hospital
Peter Arlett, Head of Pharmacovigilance and Epidemiology Department, EMA
Josep Figueras, Director of the European Observatory on Health Systems and Policies
15.20Thematic discussion: Challenges and opportunities in engaging people within secondary use of health data 

Louisa Stüwe, eHealth Directorate, French EU Presidency, Ministry of Health France
Rosie Richards, Assistant Director, NHS Confederation, European Office
Lars Münter, Adm. Director Danish Council for Better Hygiene, Head of International Projects Unit, Danish Committee for Health Education
Minna Anttonen, Executive Director, Association of Cancer Patients in Finland
15.50Break
16.10Fireside chat: Citizen perspective 
Birgit Bauer, Digital Health & Social Media Expert
Jyrki Kasvi, Former Finnish MP & Tech influencer
16.35Fireside chat: Industry perspective 
Teemu Suna, Co-founder & CEO, Nightingale Health
Samuel Myllykangas, Executive Director, Global Specialty Genetics, Quest Diagnostics, and General Manager, Blueprint Genetics
17.00Closing words

Speakers

Martin Seychell

Deputy Director-General, Directorate-General for International Partnerships, European Commission

Mr Seychell is a graduate in chemistry and pharmaceutical technology. He occupied the post of Head of Directorate for Foodstuffs and Chemicals at the Malta Standards Authority between 2001 and 2006, and that of Director of Environment Protection at the Malta Environment and Planning Authority between 2006 and 2011.

He was appointed Deputy Director General for Health and Consumers at the European Commission in March 2011. Between 2014 and 2020 he was Deputy Director-General for Health in the Health and Food Safety Directorate-General (SANTE), responsible for directorates dealing with public health and health systems and products, covering a number of policy areas including health security, health systems, pharmaceuticals, medical devices, tobacco control and digital health. He also represented the Commission on the Management Board of the European Centre for Disease Prevention and
Control (ECDC) between 2011 and 2020.

He was appointed Deputy Director General responsible for Directorates G & R (Human
Development, Migration, Governance and Peace (G), and Resources (R) in DG INTPA in June 2020.

Coen van Gool

Head of WHO collaborating centre for the Family of International Classifications (WHO-FIC), Epidemiologist/Psychologist at Centre for Public Health Forecasting (RIVM)

Coen H. van Gool works as a project lead for the National Institute for Public Health and the Environment (RIVM) in the Netherlands. Besides his involvement in Work Package 5 on governance of the JA TEHDAS, he heads the WHO collaborating centre for the Family of International Classifications in the Netherlands. Being convinced that better (exchange of) health data leads to better health information, he participates in several health information standardization initiatives, both nationally and internationally. Coen has a background in both psychology and epidemiology.

Henrique Martins

Associate Professor, ISCTE – Lisbon University Institute

Henrique Martins, MD, PhD, MLaw, FIAHSI is Associate Professor in Health Management, Leadership and Digital Health at FCS-UBI, ISCTE-IUL. He is the past co-chair of the eHealth Network and was president of SPMS, Portugal’s Digital Health Agency for about 7 years. He co-leads ISCTE-HEALTH, is member of several advisory boards, and member of the Board of Directors of HL7 Europe Foundation. He works as academic and providing independent consultancy in Digital health to Governments, International Organizations and Projects.

Enrique Bernal-Delgado

MD PhD, Senior Scientist, Head of Data Science for Health Services and Policy Research unit, Institute for Health Sciences in Aragon (IACS)

Enrique Bernal-Delgado MD PhD is also Master in Public Health and Master in Health Economics. After a period as Visiting Scholar at The Dartmouth Institute (Dartmouth Medical School, NH, USA), he founded the Data Sciences for Health Services and Policy research group at the Institute for Health Sciences in Aragon (IACS) where currently holds the position of senior scientist.

His research, building on the secondary use of real-life data, aims a) the study of unwarranted variations in health systems performance; b) the comparative effectiveness of complex interventions delivered to chronic and fragile populations; and, c) the development of methodology and technologies for the reuse of massive real world data.

Anders Bjartell

MD, PhD FEBU – EAU & BioMed Alliance, Professor in Urology, Lund University, Senior Consultant, Skåne University Hospital

Currently board member of the EAU Guideline office and Chairman of the EAU Research Foundation. Professor in clinical urology and senior consultant at one of the largest urology departments in Scandinavia. Long-term experience in translational and clinical prostate cancer research and as coordinating partner for Lund University in several EU sponsored programs since 1996 including the IMI funded Prostate PIONEER on the use of Big Data for prostate cancer outcomes. Also, he is a member of another IMI funded project called OPTIMA as a clinical expert, which involves the use of AI for treatment of solid cancer tumours (prostate, breast and lung cancer). Six years’ experience as vice-dean at the Medical Faculty Lund University responsible for outcome of governmental funding of research at university hospitals. Vast experience in clinical and translational prostate cancer research, biobanking and national principal investigator in several global phase III clinical trials in prostate cancer.

Josep Figueras

Director of the European Observatory on Health Systems and Policies

Josep Figueras, MD, MPH, PhD (econ), FFPH is the Director of the European Observatory on Health Systems and Policies. In addition to WHO, he has served major multilateral agencies such as the European Commission and the World Bank, and has worked as a policy advisor in more than 40 countries in the European Region and beyond. He is a member of several governing, advisory and editorial boards including the European Health Forum Gastein and is Cochair of the Scientific Board for the Monti Commission. He is an honorary fellow of the UK Faculty of Public Health, received the Andrija Stampar Medal for excellence in Public Health and a Doctorate Honoris Causa from Semmelweis University. His research focuses on comparative health system and policy analysis and has produced several volumes in this field.

Louisa Stüwe

eHealth Directorate, French EU Presidency, Ministry of Health France

Louisa Stüwe is eHealth project lead at the French Ministry of Health to support the French Presidency of the Council of the EU during the first semester of 2022, transitioning from her role as international policy manager at the French Health Data Hub where she is in charge of international policy and partnerships, including the French contribution to the European Health Data Space.

Before joining the Health Data Hub, Louisa managed health, research and innovation programs and activities, funding, policy, projects and networks at the Pan American Health Organization/WHO, the French Ministry of Health and the World Bank Group. She has also experience in the pharmaceutical sector and consulting in other sectors. Louisa studied Public Administration and International Politics at Sciences Po Paris and Georgetown University as well as Public Health at the French School of Public Health (EHESP). She has taught several health policy-related courses at Sciences Po Paris and EHESP.

Lars Münter

Adm. Director Danish Council for Better Hygiene, Head of International Projects Unit, Danish Committee for Health Education

Lars Münter is a dedicated champion for self-care in Europe. As part of his work in Scandinavia and Europe, knowledge sharing and joint platforms to promote health literacy, empowerment, and citizen action – including corporate social responsibility – has been daily activities across sectors and borders for 15 years.

As Head of International Projects in the Danish Committee for Health Education, he’s dedicated to practical initiatives and systems leadership to support change: Eg in Denmark, this also involves coordinating the Danish Council for Better Hygiene; in the Nordics it includes being Communications Lead for the Nordic Health 2030 Movement, and in Europe he’s been running the annual Self-Care Week Europe connecting stakeholders, themes, and organizations.

Rosie Richards

Assistant Director, NHS Confederation, European Office

Rosie is Assistant Director for European Digital and Research Policy at the NHS Confederation. The NHS Confederation is a membership organisation that brings together, supports and speaks for the whole healthcare system in England, Wales and Northern Ireland. Rosie is also a champion for Understanding Patient Data, an initiative that aims to make uses of health data more visible, understandable and trustworthy. In addition, she holds the roles of UK National Contact Point for the EU Health Programmes and the UK Representative to the EU Joint Action Towards a Health Data Space where she plays a leading role in both the citizen engagement and governance work programmes.

Birgit Bauer

Digital Health & Social Media Expert

Birgit is German and works with a Business Partner in the company, the Manufaktur für Antworten UG. Birgit works as Social Media and Digital Health Expert, Journalist and Speaker with a more than 16 years’ experience and a specialisation in Healthcare, developing Workshops and Talks about the use of Social Media for Target Groups e.g. Patients, Patient Organisation, NPO, Industry and BioTech Companies, Start-Ups and governmental institutions.

Birgit aka @Birgitpower on Twitter is one of the most influential Blogger about Multiple Sclerosis and Healthcare in Germany and Europe. She started her Blog “Fast normal! Mein Leben mit MS” – “Almost normal – My Life with MS” in 2007.

Jyrki Kasvi

Former Finnish MP & Tech influencer

Jyrki Kasvi is a former member of the Finnish Parliament representing the Green League, but he is also a former game journalist and researcher. He has written several books about computers and information society. He has a PhD in Engineering from the Helsinki University of Technology. Kasvi was diagnosed with bladder cancer in 2003 and writes a blog in Uusi Suomi – a media of political news – where he shares his thoughts on his condition, health care and politics.

Teemu Suna

Co-founder & CEO, Nightingale Health

Teemu Suna is one of the founders and CEO of Nightingale Health, a Helsinki-based biotech company, reinventing preventive health with blood-based health data. During the past five years, Suna has steered Nightingale into a publicly listed growth company with customers in over 20 countries. He has over 15 years of experience in management positions, having previously served as Chief Technology Officer at Fujitsu Finland. As a passionate advocate for visionary healthcare solutions, Suna leads Nightingale on its mission to solve the burden of chronic diseases by empowering people to follow-up on their own health and take actions to stay healthy.

Samuel Myllykangas

Executive Director, Global Specialty Genetics, Quest Diagnostics, and General Manager, Blueprint Genetics

Samuel is the Executive Director of Global Specialty Genetics at Quest Diagnostics and General Manager at Blueprint Genetics as well as a co-founder of the company. He is an expert in genome analysis technologies and has extensive experience in bioinformatics and cancer genomics research. Samuel received his PhD from the University of Helsinki and completed his postdoctoral research at Stanford University. He is an adjunct professor in genetics at the University of Helsinki, an author of several high-impact publications, and an inventor and patent holder of DNA sequencing methods.

Programme is subject to change. 

For more information, please contact tehdascoordination@sitra.fi.

Share away!