The forum engages with European projects to ensure TEHDAS builds on the existing knowledge on the secondary use of health data in Europe.
The first project forum takes place online on 18-19 May. European initiatives and projects are invited to participate in the forum to share relevant outputs, to build on previous findings and to discuss potential synergies.
The project forums are invitation only. If you are involved in a European project and would like to attend, please contact TEHDAS.firstname.lastname@example.org to receive further information.
Day 1. 18 May 2021 9.00-12.00 CET
|9.00||Opening words – Aim of the project forum and introduction of TEHDAS||Markus Kalliola, the Finnish Innovation Fund Sitra, Finland|
Moderator: Petronille Bogaert, Sciensano
Topic 1. Sharing data for health: Frameworks and governance principles
Providing options for a transparent and FAIR operational framework and governance models for the exchange and secondary use of health data, based on trust, citizen empowerment and a common good.
|9.15||Work package 5: Sharing data for health||Michel Silvestri, Swedish eHealth Agency, Sweden|
|9.25||Project pitch: Assessment of the EU Member States’ rules on health data in the light of GDPR||Evert-Ben van Veen|
|9.35||Project pitch: Beyond 1 Million Genomes||Katja Kivinen|
|9.45||Project pitch: DARWIN||Arlett Peter & Stefan Blixen|
Topic 2. Semantic interoperability, data quality assurance
Providing guidance on data quality assurance and solutions for semantic interoperability.
|11.00||Work package 6: Excellence in data quality||Enrique Bernal Delgado, the Institute for Health Sciences in Aragon, Spain|
|11.10||Project pitch: SNOMED||Ian Green|
|11.20||Project pitch: EHDEN||Peter Rijnbeek|
|11.30||Project pitch: RDCODE ORPHANET||Ana Rath|
Day 2. 19 May 2021 9.00-12.00 CET
Topic 3. Service and architectural technical interoperability
Providing options for the technical interoperability elements of the European Health Data Space, according to the European Interoperability Framework.
|9.00||Work package 7: Connecting the dots||Sandra García Armesto, the Institute for Health Sciences in Aragon, Spain|
|9.10||Project pitch: Proud Engineers||Hille Hinsberg|
|9.20||Project pitch: InteropEHRate.eu EHTEL||Luc Nicolas|
|9.30||Project pitch: PHIRI||Ronan Lyons|
Topic 4. Citizen engagement
Aiming to obtain a better understanding of citizens’ relationship with health data in the EU, to better inform and sensitise citizens regarding health data, and to recommend data altruism practices for the European Health Data Space.
|10.40||Work package 8: Citizens||Louisa Stuwe, French Health Data Hub|
|10.50||Project pitch: My Data||Isabelle de Zegher|
|11.00||Project pitch: H2O Observatories||Melpomeni Styliadou|
|11.10||Project pitch: Personal Health Train||Lianne Ippel|
|11.20||Project pitch: Gravitate-Health||Anne Moen|
|11.45||Concluding remarks||Petronille Bogaert, Sciensano, Belgium|
|12.00||Project forum ends|
The programme is subject to changes.