Project forum
Project forum engages with European projects to ensure TEHDAS builds on the existing knowledge on the secondary use of health data in Europe.
The fourth and final project forum took place on Thursday 15 December at 14-17 CET online. Participants heard presentations on TEHDAS results and examples of collaboration, after which they had an opportunity to discuss the upcoming TEHDAS work in thematic breakout sessions.
Selected projects and initiatives presented how they will interlink with the European Health Data Space (EHDS).
Read the news item about the forum.
Inquiries: TEHDAS.sciensano@sciensano.be
Programme
| 14.00 | Welcome and aim | Petronille Bogaert, Sciensano |
| 14.05 | TEHDAS results | |
| WP5 – Data governance | Michel Silvestri, Swedish eHealth Agency Coen van Gool, RIVM | |
| WP4 – Country visits | Linda Abboud, Sciensano | |
| WP7 – Technical infrastructure | Juan González-García, IACS | |
| WP8 – Citizens’ engagement and data altruism | Zsófia Bulla, OKFO Louise Mathieu, Sciensano | |
| WP6 – Data quality and interoperability | Enrique Bernal-Delgado, IACS | |
| 15.00 | Breakout sessions | |
| 1. Sustainability and Governance concepts for EHDS 2. Secure Processing Environments: technical and organisational requirements 3. Data minimisation and purpose limitation: implementation and risks 4. How to maximise the impact of citizen input for the framework of the EHDS and Data altruism: definition, ethics and data altruism organisation | Moderated by TEHDAS work package leaders | |
| 15.45 | Break | |
| 15.55 | Project presentations | |
| 1. EHDS2 Pilot – Developing the technical infrastructure for EHDS 2. Genomic Data Infrastructure (GDI) – How will Genomics data link with the EHDS 3. Darwin – Using RWD to make real-world decisions and linking to EHDS 4. PHIRI – Potential PHIRI services for the EHDS 5. HealthyCloud – Strategic Agenda for a Health Research Innovation Cloud (HRIC) | 1. Mario Jendrossek, French Health Data Hub 2. Juan Arenas, ELIXIR 3. Daniel Morales Leaver and Denise Umuhire, EMA 4. Petronille Bogaert, Sciensano 5. Maria Panagiotopoulou, ECRIN | |
| 16.50 | Evaluation of Project forums | Irene Kesisoglou, Sciensano |
| 16.55-17.00 | Closing remarks | Shona Cosgrove, Sciensano |
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