Project forum engages with European projects to ensure TEHDAS builds on the existing knowledge on the secondary use of health data in Europe.
The third project forum took place on 22 June at 14.00-17.00 CEST online. The discussions focused around the European Commission’s recently published proposal for a regulation on the European health data space.
Selected projects and initiatives presented how the European health data space relates to their future work, and how their work may adapt in response to it. There was an opportunity to discuss the legislative proposal in depth in breakout sessions.
Read the news item of the forum.
|14.00||Welcome and aim||Shona Cosgrove, Sciensano|
Moderator: Linda Abboud, Sciensano
|14.05||Presentation of EHDS proposal||Karina Zalite & Licínio Kustra Mano, European Commission|
|14.20||How will TEHDAS adapt and support the EHDS?||Minna Hendolin, Sitra|
|14.30||TEHDAS results and future plans|
|Work package 4: Country visits|
Benchmarking tool and recommendations on capacity building needs
|Irene Kesisoglou, Sciensano|
|Work package 5: Data governance: guidelines for multi-country data application requests and mutual recognition||Mario Jendrossek, French Health Data Hub|
|Work package 6: Data quality assessment framework: latest deliverable and how will it support the EHDS2||Enrique Bernal Delgado, IACS|
|Work package 7: Technical infrastructure: guidelines for Secure Processing Environments||Juan González-García, IACS|
|Work package 8: Citizen’s engagement: presentation of the initial results from TEHDAS citizen consultation||Louise Mathieu, Sciensano|
3-4 projects present how the EHDS will relate to their (future) work, and how their work may adapt
Data Saves Lives
|Project representatives: |
Gözde Susuzlu Briggs
4 breakout rooms on different sections of the EHDS proposal relevant to the secondary use of health data
1. Health data access bodies, EHDS Board (Articles 36-43, 64-65)
2. HealthData@EU cross-border health data access infrastructure, Secure Processing Environments (Articles 50, 52-53)
3. Quality aspects (Articles 55-58)
4. Citizen’s engagement (Article 40, link to Data Governance Act, consent)
Data access will be discussed in all 4 breakout sessions
Reporting back from breakout sessions and plenary discussion
|16.55 -17.00||Closing remarks|